Tuesday, January 31, 2017

Adventures in Health Care, Part III -- My Family is More Than a Burned Down House*


The week before Christmas my granddaughter, Becca, began her own introduction to the health care system. This will ongoing and lifelong as she was diagnosed and will now live with, T1D (Type 1 Diabetes, formerly known as Juvenile Diabetes). She is adapting remarkably well. She started doing her finger sticks shortly after being discharged from the ICU and has progressed to giving herself shots. Of course, she has witnessed her mother (RA) giving herself shots for years.
So now both my daughter and granddaughter have, through no fault of their own, contracted chronic autoimmune diseases. Thanks to medical advances, there are treatments for both of these diseases. However, the treatments are extremely expensive, and without insurance, good insurance, I’m not sure how well we could afford for them to be covered.
Prior to Obamacare (aka the ACA, less than 8 years ago), those pre-existing conditions would have eliminated them from being eligible for any kind of insurance coverage except through an employer’s plan. And when my daughter lost her job (which she did, an early casualty of the recession, right after Becca was born), she became dependent on her husband for that coverage. Not only that, in those less than “good old days,” she would have been virtually forced to conceal her disease in order to get hired at another job. Why? Because with employer-provided health insurance, a company wouldn’t hire her and thus raise their exposure to the expenses associated with the disease. 
Back when I was negotiating contracts (including health insurance) for Hancock teachers, we knew exactly who were the few teachers exposing the pool to risk and causing our rates to go up. Because that is what any kind of insurance is. We all contribute to expand the pool and spread the risk. We are all helping to pay for someone else. Fortunately, my daughter has a husband with skills and a good job, complete with good insurance. Even so, the expenses they face for their meds are significant. And what would have happened had he lost, or should he lose, his job, an outcome never beyond the realm of possibility in our modern economy? 
My brother, with a serious heart condition, also needed his wife’s employer-based insurance until he finally qualified for socialized medicine (Medicare). I’ll draw conclusions and make some further observations about the system in Part IV, but I unmistakably have a vested interest in the pre-existing conditions issue. Please forgive me if I take your opposition to all things Obamacare-related personally. And, for obvious reasons, I also clearly prefer to have health care decisions in the hands of a doctor and not a for profit insurance company that does not want to cover the $2,000+ a month life-saving medical treatment. 
* See PA Senator Pat Toomey (R) for this analogy. To be fair, he didn’t leave it at that and did suggest there might be other ways to cover people without overburdening the poor insurance companies. I, personally, am not that big a fan of insurance companies, but he apparently is sympathetic to their plight. I am guessing their donations to his campaign are more significant than mine.